Other websites
You might find the following websites useful:
Spires Cleft Centre
Information for parents of babies and children with cleft lip and palate in the Wessex region.
www.spirescentre.nhs.uk/
Antenatal Results and Choices
Support and information for parents throughout the antenatal screening and diagnosis process, and when a diagnosis of abnormality has been made in their unborn baby.
www.arc-uk.org/
Down's Syndrome Association
Support and information for people with Down's syndrome and their families.
www.downs-syndrome.org.uk/
Little Hearts Matter
Support and information for people and families affected by single ventricle heart disease.
www.lhm.org.uk/
Contact a Family
UK charity for families with disabled children, offering information on specific conditions and rare disorders.
www.cafamily.org.uk
SHINE
Providing specialist advice and support for spina bifida and hydrocephalus
https://www.shinecharity.org.uk/
Southampton General Hospital, children’s cardiac
Children who come under the care of cardiac services, stay on our purpose-built paediatric ward, E1 – known as ocean ward.
British Heart Foundation: Children and young people
A national charity offering advice and information on heart conditions and lifestyle, including resources aimed at children and young people.
https://www.bhf.org.uk/informationsupport/support/children-and-young-people
SOFT UK
Provides information and support to families affected by Trisomy 13 (Patau’s Syndrome) and Trisomy 18 (Edwards Syndrome).
INFOKID
Provides information for parents and carers about kidney conditions in babies, children and young people
Twins Trust
Provides information and support for families of twins, triplets or more.